The National Plan to End PD
Please see the timeline of the Plan from the introduction to updates today !
The National Plan to End Parkinson’s Disease.
Tracking the beginning, when it became Law and the future!
Q & A with Sharon’s son, George. Episode 19 Special Guest: United States Senator, Rick Scott. Florida. https://youtu.be/q2N-qHC-zsc
Q & A with Sharon’s son, George Ep 4: Special Guest – U.S. Rep Paul D. Tonko https://youtu.be/YRelmNdHq-U
The Michael J. Fox Foundation For Parkinson’s Research
https://www.michaeljfox.org/news/national-plan-end-parkinsons-act-makes-progress-congress
https://www.michaeljfox.org/national-parkinsons-project
History of the Bill
https://www.govtrack.us/congress/bills/118/hr2365
| Mar 29, 2023 |
Introduced Bills and resolutions are referred to committees which debate the bill before possibly sending it on to the whole chamber. |
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| Dec 6, 2023 |
Ordered Reported A committee has voted to issue a report to the full chamber recommending that the bill be considered further. Only about 1 in 4 bills are reported out of committee. |
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| Dec 12, 2023 |
Text Published Updated bill text was published as of Preprint (Suspension). |
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| Dec 12, 2023 |
Reported by House Committee on Energy and Commerce A committee issued a report on the bill, which often provides helpful explanatory background on the issue addressed by the bill and the bill’s intentions. |
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| Dec 14, 2023 |
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Passed House (Senate next) The bill was passed in a vote in the House. It goes to the Senate next. |
| May 23, 2024 |
Passed Senate The bill was passed by both chambers in identical form. It goes to the President next who may sign or veto the bill. The vote was by Voice Vote so no record of individual votes was made. |
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| Jul 2, 2024 |
Enacted — Signed by the President The President signed the bill and it became law. |
| Sponsor: | Sen. Capito, Shelley Moore [R-WV] (Introduced 09/14/2022) |
| Committees: | Senate – Health, Education, Labor, and Pensions |
| Latest Action: | Senate – 09/14/2022 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (All Actions) |
https://www.congress.gov/bill/117th-congress/senate-bill/4851
Sponsor: Sen. Capito, Shelley Moore [R-WV] (Introduced 03/29/2023)
Committees: Senate – Health, Education, Labor, and Pensions
Latest Action: Senate – 03/29/2023 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (All Actions)
https://www.congress.gov/bill/118th-congress/senate-bill/1064
The National Plan to End Parkinson’s Disease is now Law.
On July 2, 2024, President Biden signed the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act into law. This law calls for an integrated national plan to prevent, diagnose, treat, and cure Parkinson’s, ameliorate symptoms, and slow or stop progression.
S.4851 – National Plan to End Parkinson’s Act 117th Congress (2021-2022)
Sponsor: Sen. Capito, Shelley Moore [R-WV] (Introduced 09/14/2022)
https://www.congress.gov/bill/117th-congress/senate-bill/4851
The Final Passing vote https://www.govtrack.us/congress/votes/118-2023/h724
The Final Vote Call Dec 14, 2023, 10:48 AM | 118th Congress, 1st Session
https://clerk.house.gov/Votes/2023724
On July 2, 2024, President Biden signed the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act into law. This law calls for an integrated national plan to prevent, diagnose, treat, and cure Parkinson’s, ameliorate symptoms, and slow or stop progression.
https://www.ninds.nih.gov/current-research/trans-agency-activities/national-plan-end-parkinsons
2025 the new committee will be known as the Advisory Council on Parkinson’s research, care, and services. National Institute of Neurological Disorders and Stroke
The Federal Advisory Council on Parkinson’s Research, Care, and Services will provide advice on Parkinson’s-related issues, including recommendations to be included in the National Plan to End Parkinson’s. The Advisory Council on Parkinson’s Research, Care, and Services, will include people living with Parkinson’s or neurodegenerative Parkinsonisms, caregivers, health care providers, researchers, representatives from advocacy organizations, and representatives from federal agencies.
A Message from the Director (National Institute of Neurological Disorders and Stroke)
https://www.ninds.nih.gov/news-events/directors-messages/all-directors-messages/national-plan-end-parkinsons
Also The U.S. Department of Health and Human Services
HHS Announces Progress on Establishing the National Parkinson’s Project
Today, U.S. Department of Health and Human Services Secretary Xavier Becerra announced he would delegate the authority vested in the HHS under the Dr. Emmanuel Bilirakis and Honorable Jennifer Wexton National Plan to End Parkinson’s Act to the National Institutes of Health, with support from the HHS Office of the Assistant Secretary for Health.
The law requires the agency to develop a national project to prevent, diagnose, treat, and cure Parkinson’s, to be known as the National Parkinson’s Project, including a requirement to establish and maintain an Advisory Council on Parkinson’s Research, Care, and Services. The council will be cochaired by Walter J. Koroshetz, MD, Director of NIH’s National Institute of Neurological Disorders and Stroke, and David Goldstein, MS, Associate Deputy Director for the Office of Science and Medicine for HHS’ Office of the Assistant Secretary for Health.
References
National Institute of Neurological Disorders and Stroke (2025). A Message from the Director. Retrieved from https://www.ninds.nih.gov/news-events/directors-messages/all-directors-messages/national-plan-end-parkinsons
TogetherForSharon® (2024). Q & A with Sharon’s son, George. Episode 19 Special Guest: United States Senator, Rick Scott. Florida. https://youtu.be/q2N-qHC-zsc
TogetherForSharon® (2024). Q & A with Sharon’s son, George Ep 4: Special Guest – U.S. Rep Paul D. Tonko https://youtu.be/YRelmNdHq-U
United States Senate (2022). Senate – 09/14/2022 Read twice and referred to the Committee on Healt. Retrieved from https://www.congress.gov/bill/117th-congress/senate-bill/4851
United States Senate (2023). Senate – 03/29/2023 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. Retrieved from https://www.congress.gov/bill/118th-congress/senate-bill/1064
United States Congress (2021). S.4851 – National Plan to End Parkinson’s Act 117th Congress. Retrieved from https://www.congress.gov/bill/117th-congress/senate-bill/4851
United States Congress (2023). The Final Vote Call Retrieved from https://clerk.house.gov/Votes/2023724
The Michael J. Fox Foundation (2024). Photo- the National Plan to End Parkinson’s Disease.
The U.S. Department of Health and Human Services (2025). HHS Announces Progress on Establishing the National Parkinson’s Project. Retrieved from https://www.hhs.gov/about/news/2025/01/08/hhs-announces-progress-establishing-national-parkinson-project.html
Disclaimer
All images and references are for educational purposes only and to provide information to the public on the progress of the National Plan to End PD.