My first time attending the World Parkinson Congress

What a week! My first time attending the World Parkinson Congress was positively overwhelming—in the very best way. It was full of surprises, reunions with old friends, new friendships, and a worldwide community that I have come to know through interviewing more than 3,000 individuals and families affected by Parkinson’s disease across the globe.

Two years after my mother, Sharon, passed away, I first became aware of the World Parkinson Congress. I was saddened to learn that approximately 1.3 million people in the United States were living with Parkinson’s disease, just as my mother had, and that more than 10 million people worldwide were facing the same battle. At that moment, I began my own journey to ensure that those living with Parkinson’s, both inside and outside the United States, knew they were never alone. We are one family in advocacy—worldwide.

I never imagined I would meet so many advocates in one place at one time. One highlight was finally meeting Parky the Raccoon in person! Even more meaningful was connecting face-to-face with so many individuals whose journeys I have had the privilege to learn from and share over the past four years.

Meeting advocates and families from Mexico, Spain, Australia, the United Kingdom, France, Italy, and many other countries was truly life-changing. We shared stories, hugs, laughter, hope, and a tremendous amount of love and support. I never dreamed I would have the opportunity to meet so many people who have stood alongside me in advocacy, and I am grateful to the World Parkinson Congress for helping make another dream come true.

The opening ceremonies were absolutely inspiring. Through dance, film, music, and art, they celebrated resilience, courage, and hope in the face of adversity. There were also several special moments through recorded messages from Carol Burnett, Steve Carell, Marlee Matlin, and one of my mother’s favorites, Julie Andrews, all supporting the Red Thread movement.

Throughout the week, I attended lectures, meetings, networking events, and gatherings with people from every corner of the Parkinson’s community. The poster presentations were incredible, showcasing groundbreaking research and innovative ideas. The main Expo Hall was equally impressive, featuring organizations dedicated to serving the Parkinson’s community. I was especially honored to participate in the Book Nook and present A Son’s Journey, sharing my family’s story and the inspiration behind TogetherForSharon®.

The events and gatherings hosted by organizations such as the American Parkinson Disease Association and the PMD Alliance brought me even closer to realizing how much this community has embraced me and my family. Their support helps ensure that my mother’s memory continues to live on through advocacy, education, and service.

The work continues now that I am back home in Florida. The memories I gained, the lessons I learned, and the friendships I strengthened have ignited an even greater passion within me. My mission remains the same: to ensure that no person or family ever feels alone during their Parkinson’s journey as our family once did during my mother’s battle.

Thank you to the World Parkinson Coalition for including TogetherForSharon® as a WPC Organizational Partner and for your continued support and encouragement.

In loving memory of my mother, Sharon, we will continue to raise awareness, advocate for families affected by Parkinson’s disease, and hold onto hope for a cure. Every partnership, every conversation, and every voice help bring greater attention to this disease and the urgent need for research, support, and compassion.

Together, we are stronger. Together, we are family. Together, there is hope.

With Kirk Gibson