An interview with Marjorie Webb, Parkinson’s puts things in perspective. Plans change and I adapt.
Please tell me a little about your background.
I am a fifty-nine-year-old woman. I have lived in Alabama for most of my life. I attended Mississippi University for Women in Columbus, MS. I started my professional life as an elementary school teacher back in Alabama. I owned a small commercial embroidery business for fifteen years. Later I moved into medical office management.
Can you tell me more about your Advocacy?
I am relatively new to Parkinson’s Advocacy. I was diagnosed in 2024. I have, however, advocated for better treatment, care, and research for people living with HIV for several years as I work at an HIV clinic at the present time.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
After my diagnosis in 2024, I began to educate and advocate both for myself and others with PD.
What type of goals does individuals with Parkinson’s have when working with you?
Most individuals with Parkinson’s that I have worked with, including myself, just want to do whatever they can to slow the progression of Parkinson’s and prepare for their future.
What type of training and how long are the programs?
If you are asking about Advocacy training, I have participated in several online training programs as well as worked with some mentors.
What effect can your Advocacy have on an individual with Parkinson’s?
Advocacy can help to improve the lives of people with Parkinson’s, including myself. Personally, it keeps me fighting. Striving for improvement. Hopefully, my advocacy will affect others through improved funding, research, treatment and care.
What would you like to see as a future goal for your Advocacy?
I would like to do more advocacy on both the state/local and national levels. I would love to speak to groups about living with Parkinson’s.
What events do you participate in?
I work full time. I also do several Parkinson’s related charity events such as Moving Forward with the Parkinson’s Foundation. For my PD specifically, I go to boxing class and try to do as many other physical activities that I can.
How does this also assist the caregivers?
I educate people on the roles of care partners. I try to plan physically, mentally and financially for my uncertain future.
How can someone get in touch? mwebb@uabmc.edu
Marjorie Clark Webb. www.facebook.com/marjorie.webb.77
How can others also become advocates for awareness?
People can leverage personal stories to influence policy, participate in research, and raise awareness through established organizations. Key actions include contacting lawmakers, joining the Michael J. Fox Foundation’s Policy Network, and training through the Parkinson’s Foundation Research Advocate program.
In your opinion what is the key to effective advocacy?
Consistency, with a clear message.
How can we better fundraise to support a cure for Parkinson’s?
What other activities do you undertake to help improve and support your daily living Eg exercise and alternative remedies?
For my PD specifically, I go to boxing class and try to do as many other physical activities that I can. I am also trying to eat well and maintain overall good healthy habits.
Why should people who don’t have Parkinson’s care about this?
Parkinson’s affects more people every day. Someone they know or even themselves could be next.
Have you had any family members or relatives affected by Parkinson’s disease? No
If you had one song that would tell us more about you or represent your life, which song would it be?
Don’t Stop Believing by Journey
If you had one final statement or quote you could leave for the Parkinson’s community, what would it be?
Never stop pushing forward.
TogetherForSharon® In memory of my mother, Sharon to voice awareness & hope for a Parkinson’s Disease cure. Sharon’s Son, George
Support https://www.togetherforsharon.com/shop/
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