My Mother, Sharon Riff Ackerman: A Story of Love, Loss, and the Fight Against Parkinson’s Disease By Sharon's Son, George My mother, Sharon Riff Ackerman, was the most loving, caring, and selfless person I have ever...

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This Photo… Resilience. Never Give Up. My trip this September 2025 to the Parkinson’s Policy Forum was nothing short of magical—but it didn’t start that way. With ongoing back issues, work challenges, and an unexpected...

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The Event: The 2025 Parkinson’s Policy Forum   Tuesday, September 9, 2025 — Senate Meetings After the chaos and setbacks trying to get to Washington, D.C., I finally made it! It was exhilarating. Despite the delays, I...

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​SEEKING TO CREATE A Documentary….   I set out on a mission in 2020 after I lost my best friend and mom, Sharon to Parkinson’s Disease to never forget. I did not want anyone else to...

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While I Still Breathe: by Michael Whelan There are days now when I carry her more than she walks. Rebecca has Parkinson’s. It’s not the kind with textbook tremors. It’s the kind that steals slowly, invisibly—tightening...

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I have never been diagnosed with Parkinson’s disease but for many years I deeply studied this condition and what its sufferers go through. I became interested in Parkinson’s because overnight I developed symptoms similar...

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WHY STACK DON’T CRACK? The Stack Don’t Crack Challenge draws attention to one of the more than 40 distinct symptoms of Parkinson’s disease: the impairment of Fine Motor Skills. This symptom encompasses the subtle yet...

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We would like to invite you to join us for the NewYork – Presbyterian 2025 Annual Parkinson’s Disease Symposium for Patients, Caregivers, Community Partners, Allied Health Professionals, and Physicians in honor of Parkinson's Disease Awareness Month. Please...

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 My journey after 4 back surgeries and every procedure available…. Now the Spine cord Stimulator- Failed but not because of the technology…    Day 1, Spine Cord Simulator Trial 3/27/25  Thursday Installed the temporary for trial...

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What I have learned from decades of pain and dystonia By Tom Seaman   As I reflect on my 24 years (as of 2025) living with dystonia and pain and other symptoms that changed my life...

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