An interview with Ashleigh Gapinski: Movement and Community: Fighting Back Against Parkinson’s.
Biography
I am a NASM Certified Personal Trainer, Nutritionist, Youth Exercise Specialist, Rock Steady Boxing Coach, and PWR! Moves® Certified Instructor. I work closely with individuals living with Parkinson’s disease, using targeted exercise and lifestyle strategies to help improve mobility, confidence, and quality of life. I strongly believe that movement and community are two of the most powerful tools we have to help people live well with Parkinson’s.
Please tell me a little about your background.
I have been an athlete most of my life and have always had a passion for health, movement, and helping others feel stronger in their bodies. Over time my career evolved into coaching, wellness education, and working with special populations. When I was introduced to the Parkinson’s community through Rock Steady Boxing, it completely changed the direction of my work.
Can you tell me more about your Advocacy?
My advocacy focuses on helping people understand that Parkinson’s disease is not something individuals have to face passively. Through exercise programs, education, and strong community support, I work to empower people with tools that help them stay active, independent, and hopeful. I truly believe movement and connection can make a powerful difference in someone’s quality of life.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
My passion is helping people feel capable and strong regardless of their circumstances. When I saw the impact intentional exercise had on individuals living with Parkinson’s, I knew this was a community I wanted to serve. Their resilience continues to inspire my advocacy and commitment to spread awareness.
What type of goals do individuals with Parkinson’s have when seeing your Advocacy?
Many individuals want to maintain independence, improve balance and mobility, and feel more confident in their movement. They also want to slow symptom progression and continue doing the activities they enjoy. Just as importantly, many people are looking for a supportive community where they feel understood.
What type of training and how long are the programs?
I currently coach seven classes each week, including six Rock Steady Boxing classes and one PWR! Moves® class. Each class runs between 60–90 minutes and incorporates non-contact boxing, strength training, balance work, cognitive challenges, and functional movement designed specifically for people living with Parkinson’s.
What effect can your Advocacy have on an individual with Parkinson’s?
Advocacy and exercise programs can help individuals regain confidence, improve physical function, and feel less isolated. Many participants notice improvements in strength, balance, and overall well-being. Just as important, they discover a community that supports and encourages them.
What would you like to see as a future goal for your Advocacy?
I would love to see Parkinson’s exercise programs become a standard recommendation within medical care. My goal is to continue expanding awareness and access to movement-based programs so more people can benefit from them. The more communities understand the power of exercise and connection, the more lives we can positively impact.
What events do you participate in?
In addition to exercise classes, we organize community events that help people stay socially connected and continue living fully. Our group has enjoyed activities like bowling, craft days, ballroom dancing, and even skydiving together. These experiences remind people that life with Parkinson’s can still include adventure, laughter, and meaningful connections.
How does this also assist the caregivers?
Caregivers carry tremendous emotional and physical responsibility. When individuals with Parkinson’s become stronger and more confident through movement programs, it can ease some of that burden. These communities also provide caregivers with support and connection.
How can someone get in touch? What is your website?
People can connect with me through my wellness and coaching programs, community classes, and social media platforms. I am always happy to share resources and information for individuals and families navigating Parkinson’s.
How can others also become advocates for awareness?
Anyone can become an advocate by learning about Parkinson’s disease and sharing accurate information with others. Supporting local programs, fundraising efforts, and research initiatives can make a meaningful difference. Advocacy often begins with compassion, education, and community involvement.
In your opinion, what is the key to effective advocacy?
The key to effective advocacy is education paired with compassion. When people understand Parkinson’s and the challenges individuals face, they are more likely to support programs and research. Building strong communities also plays an important role.
How can we better fundraise to support a cure for Parkinson’s?
Fundraising becomes more powerful when people feel personally connected to the cause. Sharing real stories, creating engaging community events, and building partnerships with organizations can increase both awareness and financial support for research.
What other activities do you undertake to help improve and support your daily living Eg exercise and alternative remedies?
I personally prioritize regular movement, strength training, breathwork, and mindfulness practices. I also focus on proper nutrition and recovery so I can stay energized and continue serving my community.
Why should people who don’t have Parkinson’s care about this?
Parkinson’s disease affects millions of families around the world. Increased awareness helps improve research, resources, and support systems for those living with the disease. When communities care and get involved, it creates real progress toward better treatment and ultimately a cure.
Have you had any family members or relatives affected by Parkinson’s disease?
My connection to Parkinson’s comes primarily through the incredible individuals I work with each week. Their resilience, determination, and strength have had a profound impact on me. Being part of their journey continues to inspire my advocacy.
If you had one song that would tell us more about you or represent your life, which song would it be?
“Rise Up” by Andra Day. The message of resilience and continuing to stand up through challenges reflects both my outlook on life and the spirit I see in the Parkinson’s community.
If you had one final statement or quote you could leave for the Parkinson’s community, what would it be?
Never underestimate the power of movement, community, and hope. Together, they can help people continue fighting back against Parkinson’s every day.
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TogetherForSharon® In memory of my mother, Sharon to voice awareness & hope for a Parkinson’s Disease cure. Sharon’s Son, George
Support https://www.togetherforsharon.com/shop/
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