Books throughout the Community

Highlighting those incredible PwP Authors, Advocates, and support for those writing on important topics throughout the community and world! Please support them all……

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Dr George Ackerman. A Son’s Journey from Parkinson’s Disease Caregiver to Advocate. A Son’s Journey from Parkinson’s Disease Caregiver to Advocate. This book is, first, a memoir of and praise for my mother, Sharon, who was my best friend through both our lives and explores her journey with PD. The book is a heartfelt recollection of the beginnings of her Parkinson’s disease symptoms and my caregiving to support through her battle with PD. The book is available on Amazon at https://a.co/d/gqUwKJX In Kindle and Paperback versions.

 Hardcover https://shop.ingramspark.com/b/084?3nkv2Q8ehyoct6Wp3clw187vNUim8eOtwoDyuxiaNvC

Audiobook:  Narrated by Benjamin Powell Click here for more info.

Dr George Ackerman. Voices of Resilience: Conversations with Parkinson’s Disease Warriors, Caregivers, and Advocates – Book I. This book of interviews aims to raise awareness and hope for a cure for Parkinson’s Disease. I contacted individuals worldwide to obtain the interviews because PD does not discriminate and affects individuals, families, and communities worldwide. I felt that many other journeys needed to be shared. Click here for more info.

Catherine Armsden: An Alert, Well-Hydrated Artist in No Acute Distress. Hadley Ferguson and Catherine Armsden, a painter and a writer, have each spent years seeking a diagnosis for their troubling symptoms. When they are finally diagnosed with Parkinson’s disease, they meet in an online support group and quickly become long-distance friends. Click here for more information.

Ava Butler. Parkinson’s: A Love Story with Dementia for Dessert is Ava’s brutally honest, yet beautiful portrayal of losing her soulmate and best friend. Deeply sad at times, but also inspiring and even humorous, this story is sure to warm your heart and provide insights into the journey. Click here for more information.

John C Coleman: Rethinking Parkinson’s Disease. This book is the result of the last twenty-five years of working to understand my own life, disease process and return to health, how I and over 2000 of my patients diagnosed with Parkinson’s disease became ill, how and why I became well after being so debilitated with Parkinson’s disease symptoms, and what research (mainstream and obscure) is telling us about Parkinson’s disease, its causes and hope for wellness. Click here for more information.

Supported by Columbia University Irving Institute for Translational Science The PD Movers – We Keep Moving storybook is a compilation of narratives of African American and Black individuals and caregivers who are living and thriving with Parkinson’s disease (PD). https://pdmovers.com/

Robyn Cotton. Mary and Me is a story about two women living with Parkinson’s disease 200 years apart. Mary lived in the early 1800’s and Rose’s story is based on the author’s own experience with early onset Parkinson’s. The story takes you through an emotional rollercoaster from despair at diagnosis to hope and greater resilience.  Click here for more information.

Jane M. Cullen. Say That Again. The friendship between a retired playwright newly diagnosed with Parkinson’s and a much younger, unemployed actress transforms her life and saves his. Click here for more information.

Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD, Bastiaan R. Bloem MD PhD: Ending Parkinson’s Disease: A Prescription for Action. In the book, we argue that Parkinson’s is to a large extent, a man-made disease.  As such, it is preventable.  In Ending Parkinson’s Disease, we provide a prescription for action to prevent and end this terrible disease. Click here for more information.

Erin Galyean. Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves.  In this information-packed and action-oriented book, you will learn how to lead the charge and powerfully advocate for the patient in your life. Badass Advocate is a guidebook for influential caregiving and turns overwhelmed caregivers into empowered advocates.

Click here for more information.

Kirk Hall. Window Of Opportunity: Living with the reality of Parkinson’s and the threat of dementia. The story of one person’s journey through the initial signs of cognitive impairment associated with Parkinson’s disease and the uncertainty of a future that includes a significant probability of dementia. Kirk Hall, only 58 at the time he began noticing small signs of mild cognitive impairment, tells his story with directness, candor, sensitivity, and humor. Click here for more information.

Dawn Howard: Living with Parkinson’s, Depression and Childhood Trauma. Just when she thought she had survived the biggest hurdle of her life, life threw another curveball at her. In her story, she will take her readers back to the beginning, where it all started, up to her life now, living with Parkinson’s. She hopes that by telling her story, it will inspire others not to give up.  No matter how many times life knocks you down, there is a light at the end of the tunnel. We all have a purpose. We just have to find out what it is. https://a.co/d/03Vhb7ig

 

Mike Justak. Puck Farkinson’s: A Parkinson’s Memoir. This memoir takes you on author Mike Justak’s twenty year journey showcasing his resilience and determination to overcome a diagnosis of Early Onset Parkinson’s Disease. The book illustrates how a positive mindset, use of humor and a commitment to exercise can bring a life and ease Parkinson’s symptoms.

Click here for more information.

 

Brianna & Jill Lafferty: Wired to Be Dysfunctional.  Join a mom and daughter as we share our independent yet concurring journeys of the trials and triumphs of dealing with a rare, incurable, neurological condition Myoclonus Dystonia. This journey includes years of misdiagnoses, harmful medical advice, gaslighting, and isolation but eventually being vindicated after being approved for a life-saving Deep Brain Stimulation surgery.  Click here for more information.

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Melissa Livingston. Miles to Go Before I Sleep is a collection of short essays written by Melissa Livingston, who found community after being diagnosed at age 45.  Her words encourage, embolden and embrace the reader while teaching us all, amongst other things- that different is ok, life after diagnosis can be meaningful, and that we are not alone. Click here for more information.

 

Rich London: A Handbook for Life provides a practical and concise guide to overcoming obstacles and challenges in your life. Click here for more information.

 

Meldrum, Kristine, Bloem, Bastiaan R., Alberts, Jay, Corcos, Daniel M. Parkinson’s: How to Reduce Symptoms Through Exercise. This book shows how exercise can be a powerful tool to help manage, stabilize, and reduce PD symptoms. Start fighting back against PD today with this comprehensive and motivating book, which shows you how to exercise to improve your quality of life and overall well-being. Click here for more information. 

Joe O’Connor. The continuing saga of a former left-brain man as he looks at (P)arkinsons Disease. Click here for more information.

Michael Okun MD, Irene A. Malaty MD & Wissam Deeb MD : Living with Parkinson’s Disease: A Complete Guide for Patients and Caregivers

Worldwide, there are more than 10 million people living with Parkinson’s disease (PD). In the US alone, approximately one million Americans live with PD and approximately 60,000 more are diagnosed each year. Internationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as “the voice” of these patients and a world authority on Parkinson’s disease. His positive and optimistic approach has helped countless people manage their symptoms and achieve happiness despite them. Click here for more information.

 

Linda Olson. Gone: A Memoir of Love, Body, and Taking Back My Life. When Linda lost both legs above the knee and her right arm at age 29, her husband told her, “I didn’t  marry your legs and your arm. If you can do it, I can do it.” Thirty-five years later, after having a successful career as a radiologist and raising a family, she was diagnosed with Parkinson’s Disease. As an inspirational speaker, she shows people that it doesn’t matter if you look funny, walk or talk funny. You can still have a fulfilling life if you just get out and go.  Click here for more information.

 

Terri Pease: “Love, Dignity, and Parkinson’s: from Care Partner to Caregiver” is a compassionate guide designed to support caregivers of individuals with Parkinson’s Disease, illuminating both the challenges and the vital role of caregivers. This book offers practical advice and emotional support, helping caregivers understand their transformative journey and prioritize their own well-being alongside their caregiving duties. Click here for more information.

Tracy Cram Perkins. Dementia Home Care: How to Prepare Before, During, and After. Dementia caregivers cope with repetitive questions, mood swings, lost personal space, and live with exhaustion, frustration, and anger. You may not know how to prepare. Click Here for more information.

Beverly Ribaudo. Parkinson’s Humor – Funny Stories about My Life with Parkinson’s Disease. I have Parkinson’s Disease and a sense of humor! This is a collection of 100 funny stories about my life with Young Onset Parkinson’s Disease. I also share some helpful advice for surviving this disease. Come learn and laugh with me! Laughter is the best medicine.

https://www.amazon.com/Parkinsons-Humor-Funny-Stories-Disease/dp/1478325844

 

Karl Robb. A Soft Voice in a Noisy World. Whether you are newly diagnosed or have had Parkinson’s disease for many years, A Soft Voice in a Noisy World, is a compilation of insights, practical tools, and inspirational suggestions for improving your mind-body connection and empowering yourself to heal. With symptoms since he was 17 years old, author and blogger, Karl Robb shares his experiences and revelations living with this chronic condition for over 40 years. Click here for more information.

Tom Seaman: Beyond Pain and Suffering: Adapting to Adversity and Life Challenges. This book provides strategies for how to cope and manage the stressors in life, such as pain, trauma, diseases and other illnesses, fear, depression, anxiety, grief, relationship issues, and financial distress, to name just a few. It teaches how to not make the most difficult parts of our life the most significant part of our life. Click here for more information.

Tom Seaman: Diagnosis Dystonia: Navigating the Journey. A patient authored resource for dystonia patients, doctors, loved ones, and caregivers. Serving as a road map, it discusses personal accounts and well referenced topics from the diagnosis onward, such as grief, fear, anxiety, depression, isolation, pain and pain management, doctor visits, relationships, strategies for daily living (mental/emotional and physical), treatment options, stress and stress management, nutrition, coping skills, and more. It also demonstrates how anyone can rise from the depths of despair into a life full of hope, triumph, and joy. Many patient testimonials are included. Click here for more information.

Benjamin Stecher. Reprogramming the Brain: A Guide to the Future of the Brain and Neuromodulation by a Patient and his Doctor. The incredible journey of one Parkinson’s patient and his doctor from 20 pills a day to two metal rods implanted in his brain. Click here for more information.

 

Dr. Michele Tagliati & Jo Horne. Parkinson’s Disease for dummies. Whether the diagnosis is yours or that of a loved one, Parkinson’s Disease for Dummies contains everything you need to know about living with this disease. This easy-to-understand, straightforward, and sometimes humorous guide offers proven techniques for coping with daily issues, finding the right doctors, and providing care as the disease progresses. Click here for more information.

 

Susha Thomas: Parkinson’s Disease: Reclaim Your Life. Written by a Physical Therapist, and chosen to be displayed at the World Parkinson’s conference, this book goes over tips to help manage symptoms of Parkinson’s such as small steps, freezing episodes, small handwriting, falls, tremors and much more! Learn how to get more independent and fight this disease! Click here for more information.

 

A.C. Woolnough: Still On Fire, a former educator, shares the good, bad and ugly of Parkinson’s with humor, grace, wit and honesty. His two books-On Fire and Still on Fire will inform and entertain anyone and everyone in the PD community. Click here for more information.