An interview with Kathleen Phipps-Carter from Bisaya-Briton Adventure on Tik Tok: Life with My Unwelcomed and Uninvited Companion on January 21, 2024 by George Ackerman, Ph.D, J.D.
Biography
My name is Kathleen, and I am an operating theatre nurse by profession. My symptoms started last 2019 at age 31. I have got my diagnosis after 4 years of chasing and searching for answers in the year 2023.
Background
I am originally from the Philippines, and I came to the UK to work for the National Health Service as a nurse. In late 2019, I started to have problems with my mobility. After nearly 4 years, I was finally diagnosed with Parkinson’s Disease. Eighteen months prior to this, I thought it was the end of my independence but 1 thing that I am thankful for: is with medication I am able to lead a near-normal life.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
My passion is working in the operating theatre and being part of a team that makes a difference to people’s lives.
With regards to wanting to raise awareness about Parkinson’s, this all started when I finally got my diagnosis. I realize that people need to know about this condition. Having this condition at a young age made me want to show and share that with proper management and correct intervention, one can still take back a little of what the condition took from us (independence and purpose).
What type of goals do individuals with Parkinson’s have?
For me, it is to live a full life for as long as possible.
What effects do Parkinson’s have in an individual?
It can stop a person doing normal things. Such as walking or being able to enjoy social activities.
What would you like to see as a future for Parkinson?
If no cure would be found yet, an improvement on drugs which are being used at present to allow more people with Parkinson’s to lead a more normal life.
What research do you participate in?
Research on the Effects of Menstruation to Women with Young-Onset Parkinson’s Disease
How can someone get in touch with you?
Via email or social media accounts BB ADVENTURE (Tik Tok)
How can others also become advocates for awareness?
Let their voices and stories be heard through any media they can.
In your opinion what is the key to effective advocacy?
Determination of showing people the truth about Parkinson’s in day-to-day life as well as showing that the condition does not define us.
Why should people who don’t have Parkinson’s care about this?
Because maybe one day, either they or someone they love, might get it.
Have you had any family members or relatives affected by Parkinson’s disease?
None that I know of but 2 of my relatives had similar presenting symptoms yet healthcare access was and still is a problem in the Philippines.
If you had 1 song that would represent your life, which song would it be?
“I Get Knock Down” by Tub Thumping
If you had one final statement or quote you could leave for the Parkinson’s community, what would it be?
Take advantage of the good times and there isn’t any shame in asking for help. You are still wonderful.